CARF support groups serve as a forum for patients to share insights in a supportive, safe, and comfortable setting. Through the exchange of information, participants find emotional, medical, and cosmetic support for living with cicatricial alopecia. For more information, please visit our Support Groups page.
Thank you for visiting the CARF website, where we hope you will learn about the latest information and resources concerning cicatricial alopecia.
Cicatricial (scarring) alopecia refers to a group of rare disorders that destroy the hair follicle and replace it with scar tissue, thereby causing permanent hair loss. It occurs worldwide in otherwise healthy men and women of all ages.
CARF has grown from a group of seven patients to include more than 1,800 patients in 35 countries who have received information through our patient support and educational work – newsletters, support groups, conferences, and website. In addition, CARF-funded research is leading the effort to find more effective treatments and a cure for cicatricial alopecia.
Friday, August 10 – Sunday, August 12, 2012
Hilton Boston Back Bay Hotel
The CARF biennial conference is a must for patients and prhysicians involved with cicatricial alopecia and its related diseases. Attendees attest to a life-altering experience after participating in a variety of lectures, Q& As, discussion and support groups, and more.
This year, Drs. Lynne Goldberg and Doreen Karoll invite you and your family to attend this 3-day educational conference where you will learn more about the diagnosis and available treatments, discover the latest research breakthroughs, hear about cosmetic solutions, meet leading physicians and researchers in the field, participate in breakout sessions, meet new friends and, what’s more, explore a variety of attractions in the Boston area.
What is a Cicatricial Alopecia Patient Doctor Conference? The CARF conference in general is a place for patients and doctors to come together in a safe and supportive environment, a place where you can meet others with Cicatricial Alopecia and share your stories, a place where you can discover products and lifestyle changes to better manage your disease, a place where you will become empowered and given hope, a place where you can be yourself. Our patient conferences have changed people’s lives and we hope they can change yours as well.
Screen Our Short Documentary
We are proud to present the Zamacona Productions short documentary, "Cicatricial Alopecia." This eight-minute presentation gives hope that one day there will be a cure and better treatments for this poorly understood group of diseases.
Please note that since this video was produced, our CEO has changed as well as our address. Current contact information can be found on this website.
Our site works best when viewed with Chrome, Firefox, or Safari. Some visitors report problems with Internet Explorer. To view our videos, you will need the latest free version of Adobe Flash Player. Our videos are also available on YouTube.
Copyright © 2004 - 2012 Cicatricial Alopecia Research Foundation
