Advocating for Scarring Alopecia as Part of Hill Day for the Coalition of Skin Diseases By Larraine Bernstein This past April, I had the privilege of representing the Scarring Alopecia Foundation at the Coalition of Skin Diseases (CSD) Capitol Hill Day in Washington, D.C. Like many of you, I suffer from Frontal Fibrosing Alopecia and [...]
Treatment of lichen planopilaris with baricitinib: A retrospective study Article summary by Wonder Edem-Ineama | MD Candidate 2024 | University of California, Riverside School of Medicine. Lichen Planopilaris and Frontal Fibrosing Alopecia are inflammatory cicatricial alopecia disorders. A retrospective study was completed on whether Baricitinib, an inhibitor of the JAK-1/2 signaling pathway, can alleviate [...]
Patch testing and contact allergen avoidance in patients with lichen planopilaris and/or frontal fibrosing alopecia: A cohort study Article summary by Jessica Brown-Korsah | MD Candidate 2024 | Case Western Reserve University School of Medicine. There has been increasing evidence that lichen planopilaris/frontal fibrosing alopecia (LPP/FFA) may be caused by different environmental exposures. However, [...]
My Advice to Fellow Scarring Alopecia Patients by Chandra Kasakevich, Patient and SAF Board Member October 12, 2022 After years of reading social media posts, and my own journey since my official diagnosis in 2015, I wanted to share some advice in terms of advocacy that I have learned over the years: Do not assume that [...]
New Potential Treatment – Narrowband UV-B for Lichen Planopilaris (LPP) Lichen planopilaris (LPP) is one of the most common scarring hair loss conditions, which is characterized by inflammation and scarring change of hair follicles under microscope. Phototherapy using particular wavelength of light (narrow band ultraviolet B therapy, NBUVB) has been successfully used for many inflammatory [...]
How to Advocate with Your Insurance Company for Medical Wig Coverage By Bria MidgetteCicatricial, or scarring, alopecia is an inflammatory condition in which the hair follicles are destroyed and replaced by fibrous tissue resulting in permanent hair loss. Scarring alopecia is commonly caused by factors that increase inflammation such as hair relaxers and other chemicals, repeated [...]
Shedding Light on Shedding: How I Navigated Female Hair Loss I wake up, brush the loose hairs off of my pillow and take a cool shower, delicately washing and conditioning my hair with personally customized products from Prose before letting it air dry. I unclog the dark clump from the drain and clean up [...]
Medical Treatment Options for Hair Loss: Differences and Similarities in Common Medications Used for Cicatricial (Scarring) Alopecia Jennifer A. Wintringham Cicatricial (scarring) hair loss has a variety of different treatment options which can be overwhelming to patients. In general, all these medications are used to reduce or halt the progression of hair loss, control [...]
Medical Treatment Options for Hair Loss: Differences and Similarities in Common Medications Used for Cicatricial (Scarring) Alopecia Jennifer A. Wintringham Cicatricial (scarring) hair loss has a variety of different treatment options which can be overwhelming to patients. In general, all these medications are used to reduce or halt the progression of hair loss, control [...]
Aloe Vera, Castor Oil and Coconut Oil on the scalp of those with Cicatricial Alopecia. Help or Hindrance? By Sherifat A. Ademola MD Candidate, Class of 2022 Brody School of Medicine at East Carolina University Reviewed by Lynne Goldberg, MD Is it safe to use aloe vera, castor oil, and coconut oil on your scalp? I [...]
