On fire for research and a cure!

This diverse group of volunteer patients, physicians, and professionals guides and helps support CARF in fulfilling its mission through fundraising, oversight of its programs and activities, strategic planning, and patient support.

Board of Directors

Rita Wanser

Andrew F. Alexis, MD, MPH

Christina Arungwa, MBA

Wlima F. Bergfeld, MD, FACP

Corey Hartman, MD

Maria K. Hordinsky, MD

Christine Janus

Yolanda Lenzy, MD, MPH

Jim O'Connell

Sharon Potter

Nicole E. Rogers, MD

Jerry Shapiro, MD, FRCPC

Ken Washenik, MD, PhD


Victoria Ceh, MPA
Executive Director

Melanie Stancampiano
Associate Executive Director

Mike Andre
Website Admin

Kimberly Miller
Headquarters Manager

Sue Reed
Administrative Assistant/Bookkeeper


When you join CARF you'll be able to access our physician referral list, join local support groups, receive newsletters, be notified about upcoming patient-doctor conferences and other pertinent information.

Click here to join CARF or access the subscribers area.


CARF is the world's only voice for patients with cicatricial alopecia and we need your support. Please donate to CARF to support patients around the world impacted by scarring, inflammatory, permanent hair loss.

Click here to Donate

Question of the Month

Click here to read the Question of the Month.