On fire for research and a cure!

Welcome to CARF

Thank you for visiting the CARF website, where we hope you will learn about the latest information and resources concerning cicatricial alopecia.

Cicatricial (scarring) alopecia refers to a group of rare disorders that destroy the hair follicle and replace it with scar tissue, thereby causing permanent hair loss. It occurs worldwide in otherwise healthy men and women of all ages.

CARF has grown from a group of seven patients to include more than 1,800 patients in 35 countries who have received information through our patient support and educational work – newsletters, support groups, conferences, and website. In addition, CARF-funded research is leading the effort to find more effective treatments and a cure for cicatricial alopecia.


We are proud to present the Zamacona Productions short documentary, "Cicatricial Alopecia." This eight-minute presentation gives hope that one day there will be a cure and better treatments for this poorly understood group of diseases.


When you join CARF you'll be able to access our physician referral list, join local support groups, receive newsletters, be notified about upcoming patient-doctor conferences and other pertinent information.

Click here to join CARF.


CARF is the world's only voice for patients with cicatricial alopecia. We hope you will make a donation to support patients and our research to find better treatments and a cure. CARF needs your contribution and support.

Click here to Donate