CARF support groups serve as a forum for patients to share insights in a supportive, safe, and comfortable setting. Through the exchange of information, participants find emotional, medical and cosmetic support for living with cicatricial alopecia. For more information, please visit our Support Groups page.
CARF has grown from a group of seven patients to include more than 10,000 patients who have received information through our patient support and educational work–newsletters, support groups, conferences, and website.
Our patient members reside in 54 nations and regions, including Australia, Brazil, Canada, England, France, Greece, India, Iran, Ireland, Israel, Italy, Macedonia, Malta, the Netherlands, the Palestinian Territories, Scotland, Spain, Switzerland, and the USA.
Within the U.S., we have patients in 46 states, plus the District of Columbia.
The Cicatricial Alopecia Research Foundation (CARF) was formed as a result of one person's experience with scarring alopecia (cicatricial means scarring). When the patient realized that little is known about such disorders, she decided, with the help of her doctor, to initiate a grassroots effort to raise funds to study these problems.
CARF began raising money with the following mission in mind:
CARF funds are available to support research that will enhance our knowledge about this difficult group of diseases. Please see our Research Grants page for more information.
This website has been created to provide information about the cicatricial alopecias for patients, their families and physicians, as well as the public.