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CARF Patient Support Groups

There is no cost to attend support group meetings, which provide many benefits. Meetings give patients the opportunity to express themselves in the safety of a group that understands their emotions, to share ideas and tips about cosmetic options, to learn more about cicatricial alopecia, and to no longer feel alone. A physician must be present at all meetings to answer questions and make sure correct, up-to-date information is given.

If you live in an area where there is no support group and would like to participate in starting one, please contact us at info@carfintl.org

A support group start-up kit is available for leaders of new support groups, and we can help guide you through the process.

Support groups meet at least two times a year. Patients are welcome to attend the nearest support group in their own state or a neighboring state. For more information or to be listed to receive meeting notices, please contact the support group leaders listed below.

Boston, Massachusetts, USA


Date:June 04, 2017
Time:2:30PM-4:30PM
Location:The Brigham and Women’s Ambulatory Care Center, 850 Boylston St, Chestnut Hill MA 02467, In Fishbowl A (a conference room)
Physician:Lynne Goldberg, MD
Leader:Melody, Doreen, & Joyce
Email: bostonsupportgroup@carfintl.org
Notes:Parking is free and easily accessible! Patricia Wrixon, owner of The Salon at 10 Newbury, will be joining us for the June 4th meeting, 2:30-4:30pm. Ms. Wrixon is an expert in the art of women's hair replacement, and in addition, she has a non profit, Wigs for Well-Being, which provides wigs for women undergoing medical treatment. Collect your questions about wigs and other solutions for hair loss. Lynne Goldberg, MD, BU dermatologist, will provide a brief “what’s new” presentation and will be sure no erroneous or harmful information is unwittingly disseminated. Upcoming meeting dates: June 4, 2017 September 24, 2017 January 7, 2018 April 8, 2018 June 3, 2018

Chicago, Illinois, USA


Date:TBD
Time:10:00AM
Location:Embassy Suites Chicago Downtown/Lakefront, 511 N Columbus Drive, Chicago
Physician:Victoria Barbosa, MD, MPH, MBA
Leader:Joe & Bev
Email: chicagosupportgroup@carfintl.org
Notes:Meetings typically last 1.5-2 hours.

Detroit, Michigan, USA


Date:TBD
Time:6:00PM-8:00PM
Location:Henry Ford Medical Center, New Center One, 7th Floor Conference Room, 3031 West Grand Blvd, Detroit, MI 48201
Physician:Henry Ford Medical Center Dermatologists
Leader:Virdell
Email: detroitsupportgroup@carfintl.org
Notes:(2nd Tuesday, Quarterly)

Hampton Roads Area, Virginia, USA


Date:TBD
Time:2:00PM-4:00PM
Location:South Norfolk Library - 801 Poindexter, Chesapeake, VA
Physician:Kim Salkey, MD
Leader:Lucretia
Email: HamptonRoadsSupportGroup@carfintl.org
Notes:Meeting is open to all who live in the Hampton Roads area, including but not limited to: Chesapeake, Hampton, Newport News, Norfolk, Portsmouth, Suffolk and Virginia Beach, Virginia.

London, UK


Date:TBD
Time:10:00AM
Location:British Association of Dermatologists (BAD), Willan House, 4 Fitzroy Square, London W1T 5HQ
Physician:Ophelia Dadzie, MD and Sharon Wong, MD
Leader:Marva & Gita
Email: londonsupportgroup@carfintl.org
Notes:

Los Angeles, California, USA


Date:May 07, 2017
Time:10AM
Location:Office of Adriana Schmidt, MD, 2001 Santa Monica Boulevard, Suite 990W, Santa Monica, CA 90404. You may park on 20th and Arizona Avenues. The doors to the office building are open. Horton & Converse is on the first floor.
Physician:Adriana Schmidt, MD
Leader:Susan
Email: losangelessupportgroup@carfintl.org
Notes:Future dates in 2017: Sunday, May 7. The doors to this building may be locked, but the security guard on duty will be aware of the meeting and can assist you in entering.

Maryland, Washington DC, Virginia


Date:
Time:
Location:
Physician:Valerie Callender, MD, FAAD
Leader:Beth & Beth
Email: md-dc-va-supportgroup@carfintl.org
Notes:

Minnealpolis/St. Paul, Minnesota, USA


Date:TBD
Time:10:00AM - 12:00PM
Location:Department of Dermatology, University of Minnesota, 516 Delaware Street SE, Minneapolis (Phillips Wangensteen Building Suite 4-240)
Physician:Maria K. Hordinsky, MD
Leader:Corinna
Email: minneapolissupportgroup@carfintl.org
Notes:

New Orleans, Lousiana, USA


Date:July 09, 2017
Time:3:00PM
Location:East Jefferson General Hospital, Dreyfus Room 2 (1st floor conference center located off Hudson Garage)
Physician:Nicole Rogers, MD
Leader:Debbie, Elayne & Gerry
Email: neworleanssupportgroup@carfintl.org
Notes:NEW MEMBERS WELCOME!!

New York, New York, USA


Date:TBD
Time:TBD
Location:240 E 38th (38th between 2nd and 3rd) at NYU Langone Medical Center; Dermatology Department; 11th Floor Conference Room 11-71
Physician:Jerry Shapiro, MD
Leader:Ilene
Email: newyorksupportgroup@carfintl.org
Notes:

Pittsburgh, Pennsylvania, USA


Date:TBD
Time:6:00PM
Location:UPMC Department of Dermatology, 9000 Brooktree Road, Suite 200, Wexford, PA 15090
Physician:Joseph English III, MD
Leader:Lori
Email: pittsburghsupportgroup@carfintl.org
Notes:

San Diego, California, USA


Date:TBD
Time:TBD
Location:TBD
Physician:Judy Koperski, MD
Leader:Mary
Email: sandiegosupportgroup@carfintl.org
Notes:New Support Group! Meeting details coming soon.

San Francisco, California, USA


Date:July 11, 2017
Time:7:30PM-9:30PM
Location:Kaiser Permanente Ruby Room (follow arrows on 6th fl) 2238 Geary Boulevard San Francisco Free underground parking available. Take elevator to main lobby. Take elevator to 6th floor. Ask about carpooling.
Physician:Vera Price, MD & Ingrid Roseborough, MD
Leader:Marilyn
Email: sanfranciscosupportgroup@carfintl.org
Notes:The July meeting will include a presentation by Rachel Vaden-Bronston on deciding on best choices for hair pieces, styling, and make-up for hair loss. Future dates: October 3, 2017

Toronto, Ontario, Canada


Date:June 15, 2017
Time:6:00PM-8:00PM
Location:Yonge and Eglinton, Toronto (Please RSVP for additional meeting location details and directions)
Physician:Jeff Donovan, MD, PhD
Leader:Shirley
Email: torontosupportgroup@carfintl.org
Notes:Guest speaker in June is Dr. Jonathan Prousky. For more information visit the following site: http://www.casafiredup.com/meeting.php

Winston-Salem, NC, USA


Date:TBD
Time:7:00 PM
Location:Wake Forest Medical Center, 4618 Country Club Dr, Winston-Salem, NC 27104
Physician:Amy McMichael, MD
Leader:Travis
Email: winston-salem-sg@carfinintl.org
Notes:

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When you join CARF you'll be able to access our physician referral list, join local support groups, receive newsletters, be notified about upcoming patient-doctor conferences and other pertinent information.

Click here to join CARF or access the subscribers area.

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CARF is the world's only voice for patients with cicatricial alopecia and we need your support. Please donate to CARF to support patients around the world impacted by scarring, inflammatory, permanent hair loss.

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