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CARF Patient Support Groups

Support groups provide many benefits. They give patients the opportunity to express themselves in the safety of a group that understands their emotions, to share ideas and tips about cosmetic options, to learn more about cicatricial alopecia, and to no longer feel alone. A physician must be present at all meetings to answer questions and make sure correct, up-to-date information is given.

If you live in an area where there is no support group and would like to participate in starting one, please contact us at

A support group start-up kit is available for leaders of new support groups, and we can help guide you through the process.

Support groups meet at least two times a year. Patients are welcome to attend the nearest support group in their own state or a neighboring state. For more information or to be listed to receive meeting notices, please contact the support group leaders listed below.

Los Angeles, California

Physician:Adriana Schmidt, MD
Location:Office of Adriana Schmidt, MD, 2001 Santa Monica Boulevard, Suite 990W, Santa Monica, CA 90404. You may park on 20th and Arizona Avenues. The doors to the office building are open. Horton & Converse is on the first floor.
Date:October 19, 2014 - CANCELLED
Notes:Meeting for October 19 has been cancelled, please stay tuned for future dates! The doors to this building may be locked, but the security guard on duty will be aware of the meeting and can assist you in entering.

San Francisco, California

Physician:Vera Price, MD
Location:Kaiser Permanente Jade Room (follow arrows on 5th fl) 2238 Geary Boulevard San Francisco Free underground parking available. Take elevator to main lobby. Take elevator to 5th floor. Ask about carpooling.
Date:January 06, 2015
Notes:Meeting dates for 2015: January 6, April 7, July 7 and October 6

Chicago, Illinois, USA

Leader:Joe & Bev
Physician:Victoria Barbosa, MD, MPH, MBA
Location:Embassy Suites Chicago Downtown/Lakefront, 511 N Columbus Drive, Chicago
Date:November 08, 2014
Notes:Meetings typically last 1.5-2 hours.

New Orleans, Lousiana, USA

Leader:Debbie & Elayne
Physician:Nicole Rogers, MD
Location:East Jefferson General Hospital, Dreyfus Room I (1st floor conference center located off Hudson Garage)
Date:October 12, 2014
Notes:This will be a combined meeting with the NAAF (Alopecia Areata) support group. New Members always welcome!

Maryland, Washington DC, Virginia

Leader:Beth & Beth
Physician:Valerie Callender, MD, FAAD

Boston, Massachusetts, USA

Leader:Melody, Doreen, & Joyce
Physician:Lynne Goldberg, MD
Location:The Brigham and Women’s Medical Building, 850 Boylston St, Chestnut Hill MA 02467, In Fishbowl A (a conference room)
Date:January 04, 2015
Notes:Parking is free and easily accessible! Dermatologist Lynne Goldberg, MD of Boston University will be in attendance to be sure no erroneous or harmful information is unwittingly disseminated.

Detroit, Michigan, USA

Physician:Henry Ford Medical Center Dermatologists
Location:Henry Ford Medical Center, New Center One, 7th Floor Conference Room, 3031 West Grand Blvd, Detroit, MI 48201
Notes:(2nd Tuesday, every other month)

London, UK

Leader:Marva & Gita
Physician:Ophelia Dadzie, MD and Sharon Wong, MD
Location:British Association of Dermatologists (BAD), Willan House, 4 Fitzroy Square, London W1T 5HQ
Date:November 14, 2014
Notes:RSVP to by 7 November 2014 *Please arrive by 9.45 for registration We will be having a break during the day. Please feel free to bring your own refreshment. Nearest Tube Stations: Warren Street: Northern & Victoria lines Great Portland Street: Metropolitan, Circle and Hammersmith & City lines Regent Park station: Bakerloo line (few minutes walk away)

New York, New York, USA

Physician:Jerry Shapiro, MD
Location:40 E 38th (38th between 2nd and 3rd) at NYU Langone Medical Center; Dermatology Department; 11th Floor Conference Room 11-71.
Date:November 04, 2014
Notes:Dr. Jerry Shapiro, MD, specializing in Hair & Scalp Disorders will be available for the first hour to answer questions. The second half of the meeting is designed to give everyone an opportunity to participate as they feel comfortable. We are hoping to use this next meeting to discover the needs of the group and what members are most looking for when they attend to further develop this support group. To attend or for questions, please email Ilene at

Toronto, Ontario, Canada

Physician:Jeff Donovan, MD, PhD
Location:Yonge and Eglinton, Toronto (Please RSVP for additional meeting location details and directions)


When you join CARF you'll be able to join local support groups, receive newsletters, be notified about upcoming patient-doctor conferences and other pertinent information.

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CARF is the world's only voice for patients with cicatricial alopecia. We hope you will make a donation to support patients and our research to find better treatments and a cure. CARF needs your contribution and support.

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