There is no cost to attend CARF Support Groups. New members are welcome.

Canada/Toronto Support Group Meeting When: TBA time TBA

Where: TBA in-conjunction with the Canadian Skin Patient Alliance Conference. For information and to RSVP: www.canadianskin.ca/conference2012. Dermatologist Jeffery Donovan, MD, PhD will be present to answer medical questions.

New York Support Group Meeting
When: Wednesday, June 12th 7:00 - 9:00 pm

Where: 240 E 38th (38th between 2nd and 3rd) at NYU Langone Medical Center; Dermatology Department; 11th Floor Conference Room 11-71.

We are fortunate to have Jerry Shapiro MD as advisor to our group. Dr. Shapiro also serves as Director of the University of British Columbia Hair Clinic and is a member of CARF's Scientific Advisors. We look forward to seeing you at CARF's next patient support meeting for the NY area. RSVP to NewYorksupportgroup@gmail.com

Maryland/DC/Virginia Support Group

When: TBA
Time: 2:00-4:00 pm

Where:
Callender Dermatology & Cosmetic Center Fairwood Office Park 12200 Annapolis Road, Suite 315 Glenn Dale, MD rsvp: md-dc-va-supportgroup@carfintl.org

Boston Support Group Meeting
When: TBA
Time: 2:30 pm

Where:
850 Boylston Street Fishbowl A
Chestnut Hill, MA -- free parking available

Do you have lichen planopilaris, frontal fibrosing alopecia, central centrifugal alopecia, dissecting or tufted folliculitis, folliculitis decalvans or keloidalis? Join us! Dr. Lynne Goldberg, BU dermatologist, will provide a brief “what’s new” presentation She and Dr. Deborah Scott will be sure no erroneous or harmful information is disseminated. To register: bostonsupportgroup@carfintl.org.

Chicago Support Group Meeting
When: TBA  
Time: )

Where:

Who: Patients with scarring alopecia and their loved ones are welcome. All dermatologists caring for patients with scarring alopecia are also welcome.

What: Dr. Victoria Barbosa will answer medical questions that arise.
For information and to RSVP: 312-407-0000 or chicagosupportgroup@carfintl.org

Los Angeles NAAF
When: May 21

Time: 7:00-9:00 pm

Who: those with alopecia areata and all other types of hair loss and their friends/family. CARF patients are invited to attend the NAAF meetings.

Where: UCLA 200 Medical Plaza; Room 206 (2nd floor, off the elevators or stairs, take a right and go all the way to the end of the hall. The room is to the left.) Who: those with alopecia areata and/or other types of hair loss and their friends/family

What: open discussion

Questions: Contact me (Carolyn) at cgohster@yahoo.com or 917-687-8852

FYI - we will be taking a break for the summer. The group for scarring alopecia (although, any type of alopecia is welcome) will be meeting on June 1 in Santa Monica. please ask for details if you would like to attend that meeting.

San Francisco Support Group Meeting
When: July 2, Oct 1 Time: 7:30 - 9:30 pm

Where: Kaiser Permanente Diamond Room (follow arrows on 3rd fl) 2238 Geary Boulevard San Francisco Free underground parking available. Take elevator to main lobby. Take elevator to 3rd floor. Ask about carpooling.

A dermatologist from the University of California, San Francisco, will be present to answer questions and monitor the discussion for accuracy. For more information and to RSVP, contact Marilyn at sanfranciscosupportgroup@carfintl.org.

New Orleans Support Group
When: TBA Where:
East Jefferson General Hospital located at 4200 Houma Blvd, Metairie, LA 70006. Please park in the Hudson Garage. Use the first floor entrance. We will meet in the Dreyfus Room which is the first room on the right. Looking forward to seeing you all there! We will discuss various methods of stress management, led by member and social worker Fran Swan. See our website: carflouisiana.org. To rsvp:elaynesk@cox.net.

New patients are welcome at all groups.

 

 

 

 

 

Join Us
Donate Now
On fire for research and a cure!
CARF now has 16 support groups in various parts of the world. This is a way patients enjoy camaraderie, knowing they are not alone.

 

 

 


 

 

 

 

 

CARF logo
CARF name

 

 

Support groups provide many benefits. They give patients the opportunity to express themselves in the safety of a group that understands their emotions, to share ideas and tips about cosmetic options, to learn more about cicatricial alopecia, and to no longer feel alone. A physician must be present at all meetings to answer questions and make sure correct, up-to-date information is given.

If you live in an area where there is no support group and would like to participate in starting one, please contact our volunteer support director at info@carfintl.org.

A support group start-up kit is available for leaders of new support groups, and our director can help guide you through the process.

Support groups meet four times a year. Patients are welcome to attend the nearest support group in their own state or a neighboring state. For more information or to be listed to receive meeting notices, please contact the support group leaders listed below or call CARF at 801-3450..


U.S. Support Groups

CALIFORNIA

Los Angeles in conjunction with NAAF
losangelessupportgroup@carfintl.org

For more information, please contact directorsupport@carfintl.org.

San Francisco
Contact Marilyn at sanfranciscosupportgroup@carfintl.org

ILLINOIS

Chicago
Contact Joe and Bev at chicagosupportgroup@carfintl.org

LOUISIANA

New Orleans/Baton Rouge
Contact Debbie and Elayne at neworleanssupport@carfintl.org

MARYLAND, WASHINGTON DC, VIRGINIA

Contact Beth at md-dc-va-supportgroup@carfintl.org 

MASSACHUSETTS

Boston
Contact Melody, Doreen and Joyce at bostonsupportgroup@carfintl.org

MICHIGAN

Detroit
Contact Virdell at detroitsupportgroup@carfintl.org

MINNESOTA

Minneapolis    
Contact Maggie at minneapolissupportgroup@carfintl.org

NEW YORK
newyorksupportgroup@carfintl.org

If you are interested in volunteering as a co-leader of this group, please contact directorsupport@carfintl.org.

OREGON

Portland
Contact portlandsupportgroup@carfintl.org

UTAH

Salt Lake City
Contact saltlakecitysupportgroup@carfintl.org

International Support Groups

CANADA/Toronto

Ontario
If you are interested in volunteering as a co-leader for this group, please contact directorsupport@carfintl.org.

INDIA

Chennai
If you are interested in volunteering as a co-leader for this group, please contact directorsupport@carfintl.org.

UK

London
If you are interested in volunteering as a co-leader for this group, please contact directorsupport@carfintl.org.

Manchester
Contact Annete at manchesteruksupportgroup@carfintl.org

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Copyright © 2004-2013 Cicatricial Alopecia Research Foundation

CARF Patient Support Groups
More Good News