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Welcome to CARF, the leading patient advocacy group dedicated to helping individuals affected by scarring alopecia to live happy lives.

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Meet Our Members

When living with a rare disease, it is comforting to know that you are not alone. Each person’s journey with cicatricial alopecia is unique to them. Learn, be inspired, and get to know others through the connections at CARF. Share your story [...]

March 21st, 2021|

Adrienne B. – Meet Our Members

Adrienne B. - FFA/LPP You are not crazy.  If you see hair thinning or falling out, then you’re probably right that something is wrong. My story is probably much like most of yours.  I started noticing hair thinning at age 66.  I wasn’t overly concerned since I always had a full head of hair. I asked my [...]

March 21st, 2021|

CARF’s MANE EVENT Webinar Series

Six-Part Scarring Hair Loss Webinar Series CARF will be hosting a six-part webinar series throughout 2021. Due to the overwhelming popularity of our virtual webinars last year, the interest in continuing these educational events is in high demand. The webinars will be 90-minutes long and will feature exceptional speakers and live Q & A. The dates and times are being [...]

February 19th, 2021|
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