Welcome to CARF, the leading patient advocacy group dedicated to helping individuals affected by scarring alopecia to live happy lives.

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SCARRING ALOPECIA ORGANIZATION LAUNCHES AWARENESS MONTH THIS SEPTEMBER Kulpsville, PA – September 1, 2021. The Cicatricial Alopecia Research Foundation (CARF) announces the first-ever National Scarring Alopecia Awareness Month (NSAAM) launching September 1, 2021. There are countless numbers of underserved patients suffering from scarring alopecia, a permanent, inflammatory hair loss condition with no known cure or FDAapproved treatments. CARF has dedicated this September to educate [...]

September 1st, 2021|

Meet our Members – Tina C.

Tina C. - LPP My LPP Journey My alopecia journey began in May 2009 when I was 50 years old.  My parents both lost their body hair at a fairly young age, so I didn’t think that it was unusual that my skin was as smooth as a baby’s behind.  What caught my attention was that my [...]

August 27th, 2021|

Meet our Members – Jacqui S.

Jacqui S. - CCCA Then she lived! My journey with CCCA Then, she lived! Hey everyone, I’m Jacqui and I’m 36. My journey with CCCA likely started when I was 16 or 17, but symptoms (itching/burning) started much younger. Unfortunately, not enough was known about CCCA back then, so I was initially misdiagnosed a few times by [...]

August 26th, 2021|
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