SCARRING ALOPECIA ORGANIZATION LAUNCHES AWARENESS MONTH THIS
SEPTEMBER

Kulpsville, PA – September 1, 2021. The Cicatricial Alopecia Research Foundation (CARF) announces the first-ever National Scarring Alopecia Awareness Month (NSAAM) launching September 1, 2021. There are countless numbers of underserved patients suffering from scarring alopecia, a permanent, inflammatory hair loss condition with no known cure or FDAapproved treatments. CARF has dedicated this September to educate and bring attention about this rapidly growing hair loss disease to hair stylists and hair salons.

The National Scarring Alopecia Awareness Month (NSAAM) will showcase patient stories and widespread educational outreach to hair stylists and salons to identify the early signs and symptoms of the disease. Once the disease attacks the hair follicles, permanent hair loss occurs. According to Kris Wharton, CARF’s President and scarring alopecia patient, “This is such a devastating disease. If my hairdresser knew about scarring alopecia and noticed my symptoms earlier, I would have sought medical treatment long before I did. By the time I knew what was going on; I already lost most of my hair.” Quick detection and proper treatments can halt the progression, but only if caught in the early stages.

Hair care providers are often the first to notice changes in their client’s scalp and hair pattern. CARF is offering a FREE 20-minute educational training study to all hair stylists and salon owners. Participants will learn about the different types of scarring hair loss and the hallmark signs of each. Upon completion, the stylist or salon will be recognized by CARF as a member of its distinguished list of stylists and salons.

CARF represents thousands of patients who are diagnosed and coping with cicatricial (scarring) alopecia. This permanent hair loss disorder is not well-known by physicians and is difficult to correctly identify and manage. There is no known cure or FDA-approved medication/treatment for scarring alopecia. The treatment paradigm varies by physician and disease state (mild, moderate, severe). Medications typically prescribed to treat scarring alopecia are topical antiinflammatories, steroid injections, and antibiotics. Immunosuppressive drugs, while off-label for scarring alopecia, are often prescribed for more severe cases.

Dermatologists and hair loss experts are reporting a significant increase in scarring alopecia patients over the past several years. The cause is not yet known for this surge of new patients. The differences between alopecia and scarring alopecia are the hair follicles are permanently destroyed resulting in permanent hair loss and patients typically experience significant pain, burning and itching on their scalp.

Aside from being a medical condition, scarring hair loss is also an emotional disease. Often patients fear rejection, embarrassment, and lose their self-confidence. They spend hours and countless dollars on hair care products, camouflaging techniques, doctor appointments, and constantly worry about their appearance.

About CARF
CARF is the only patient advocacy organization in the world driving and promoting research, education, and support for this disease. Our vision is to help patients’ live healthy and happy lives.

Incorporated in 2004, CARF has grown from a small group of patients to nearly 7,000 patients and medical professionals worldwide on record. CARF is guided by a 17-member Medical and Scientific Advisory Board of world-renown researchers and clinicians. Through programs of education, support, and research, CARF strives to the meet the needs of this underserved patient community and to provide hope for the future.

For more information about NSAAM and CARF, visit www.carfintl.org/nsaam, call the CARF national office at 267.613.9811, or email info@carfintl.org.