A Glimpse into Some Results from 4Part Survey Series

Thank you to everyone who participated in the survey series. We had over 300 members answering each of the four surveys and sharing input, ideas, and personal advice. The office is busy summarizing the information to build CARF’s future strategic plan, but we wanted to share just a few snippets of what we’ve learned so far. [...]

2019-10-23T01:27:12-04:00October 23rd, 2019|Categories: Uncategorized|

Acceptance of my Frontal Fibrosing Alopecia

Learning I have this crazy thing called frontal fibrosing alopecia (FFA) left me feeling both numb with grief yet mysteriously relieved. By the time I was diagnosed in the summer of 2016, I had already run the gamut of hair camouflage techniques and futile attempts to get my hair to start growing again. Extensive Google searches [...]

2019-10-23T01:09:00-04:00October 23rd, 2019|Categories: Support, Uncategorized|

Frontal Fibrosing Alopecia: Cutaneous Associations in Women With Skin of Color

By Loren Krueger, MD March 2019 Frontal fibrosing alopecia, or FFA, is a scarring form of hair loss that commonly occurs at the frontal and temporal hairlines. Its incidence is increasing. As we learn more about FFA, we are beginning to identify additional skin and hair findings that are associated with FFA. FFA may involve loss [...]

2019-03-24T13:48:29-04:00March 24th, 2019|Categories: Uncategorized|
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