Many of our members take solace in knowing that there is a patient advocacy organization working exclusively to meet the unique needs of the cicatricial alopecia community. They know where to turn when they want a referral to a knowledgeable dermatologist or to learn about the latest research in this unique hair disorder. They know firsthand the vital connections CARF provides through our patient outreach volunteers or conferences.

Our dedicated volunteers and staff at the national office make this all possible. CARF’s day-to-day operations, including our valuable programing and informational services rely solely on the generosity of our donors. We receive no government funding or foundation giving. We operate on a very limited budget and promise to use your gift in the wisest way possible.

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Here’s How You Can Help
There are many ways you can have an impact within our community. Donating to CARF is very much-needed and appreciated. Even the smallest gift can make a difference, as all donations can add up to something big!

Where Your Money Is Going
To increase transparency in our organization, we’ve outlined some key areas we are looking to develop in the next year. However, we can’t do this alone. We need your support to make this happen.

CARF’s Future: Research: In our next fiscal year, we are dedicated to funding a research grant. We plan to strengthen our presence and influence among leading investigators and leverage our patients’ voices for better outcomes. We need to lead the way to better treatments and one day, a cure for cicatricial alopecia. We’re also working to produce a quarterly research publication that would summarize in laymen’s terms the ongoing studies and what the potential outcomes could mean for you.

Support: We look forward to reactivating several of our support groups and expanding our outreach to new locations. We also plan to host one-day meetings in regions that do not have active support groups, increasing opportunities for connections with our patient community and medical professionals.

Information: Utilizing today’s technology, we will offer online educational webinars, connecting you with the leading medical professionals from the comfort of your own home. We will continue expand and update our website content to include ways for to deeper engagement with CARF and each other.

Awareness: Our year-long communication calendar is filled with e-news, social media posts, newsletters and patient stories. With this increased information and ways to connect, we anticipate the expansion of CARF’s network of members, families, friends, physicians and researchers.

Donate Online
*Consider making a sustainable impact on the CARF Community by making a monthly donation.

Matching Gifts
Double or triple the size of your gift by participating in your employer’s matching gift program.

Make a Planned Gift
The opportunities for charitable gifts include, securities, tangible assets and bequests. By planning a gift, you will help us meet both current and long-term needs for the continuation of CARF’s mission. The opportunities for charitable gifts to CARF are many and varied:

Marketable Securities – Any outright gift of appreciated securities is often an attractive way of realizing your charitable intentions toward CARF. Your gift of listed stocks, bonds, or other publicly traded securities may entitle you to a charitable income tax deduction of the full fair market value of the securities on the date of the gift, provided you have owned the securities for more than one year. Your representative can coordinate this transfer by calling CARF’s office at (310)810.3450.

Tangible Property– You may wish to give personal property such as art objects, real estate or other tangible items of value. If CARF can use your gift to further its mission and you have owned the property for more than one year, you will be eligible for a fair market value charitable income tax deduction without incurring capital gains on any appreciation. If you hold tangible personal property that you believe will be of value to CARF, please contact the CARF office at (310)810.3450 to discuss your gift.

Will/Bequests– Your legacy will add to the financial stability of CARF. Your participation in this tradition of remembrance will help insure that there will be a financially strong organization in the future. A bequest to CARF will also qualify your estate for an estate tax charitable deduction equal to the entire amount you bequeath. Bequests may take several forms. Sample language for a general bequest: “I give {indicate here a dollar amount, a description of specific asset(s), and/or a fixed percentage of the rest, residue, and remainder of my estate} to the Cicatricial Alopecia Research Foundation (CARF) in Kulpsville, PA, for its general purposes (or {indicate here your intended use of the donation, such as research, community outreach programs, scholarships, education, publications, etc.}.

CARF is a federally recognized 501(c) (3) non-profit organization. Our federal tax identification number is 20-2049037.

It is our hope that this webpage will generate conversations between you, your financial advisors, and CARF staff. You can become a partner in CARF’s future through your planned gift. If you would like additional information on any aspect of giving to CARF, please contact the national office at (310)810.3450 or email your thoughts and questions.

United Way
Give to CARF by donor-designating your United Way contribution. Simply write in CARF’s name, address and federal tax ID (20-2049037) number on your designation form, and your gift will be sent to us.

Send a Donation in by Mail
CARF
1586 Sumneytown Pike, PO Box 1322
Kulpsville, PA 19443

If you have any questions about donating, please call the CARF Office at (310)810.3450 or info@carfintl.org. 

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