Leave any preconceptions at home. Be open-minded and remember this is a learning experience.
Try to limit the number of people who go to the appointment. This will help with concentration and focus and ensure that you cover all your areas of concern. The more relaxed you can remain, the more effective the visit will be.
Discuss the situation with your spouse or other family members who will not be at the doctor visit. Write a list of their questions, as well as your own, and bring it with you.
Write a summary, journaling what your experience has been since you first became aware of symptoms. Record any information you have that help form a whole picture for the physician, including symptoms, concerns, and specifically how cicatricial alopecia is affecting your lifestyle. Writing it down may also take some of the emotion out of the story, so you can remain focused.
Bring all blood test results, physician reports, photographs, skin biopsy reports and the slides —basically anything that has been medically recorded.
Always remember there is a difference in what you read on the internet, and what the average experience might be. Often the internet is filled with “worst case scenario” stories. At your visit, discuss the things that you have seen or heard that may be scary or alarming. Your doctor will be able to discern medical fact from hype and sensationalism, and provide more supportive stories, people and resources.
Most importantly, don’t hold back on discussing anything that comes to mind, particularly issues that have made you uncomfortable. This visit is an opportunity to educate yourself and to give yourself peace of mind.