When living with a rare disease, it is comforting to know that you are not alone. Each person’s journey with cicatricial alopecia is unique to them.
Learn, be inspired, and get to know others through the connections at CARF.

Share your story

Nancy G.
LPP
A Patient’s Perspective: Half Empty or Half Full?


Chris J.
LPP/FFA
Sometimes you need to take your own advice…my journey so far and lessons learned.


Sista D.
FFA/LPP
Living MY Life


Sally W.
FFA/LPP
My Hair Loss Journey


Teresa A.
Pseudopelade Scarring Alopecia
My New Normal


Angela P.
CCCA/LPP
Counting Myself Lucky


Betty T.
LPP
An Interview by Laurence Spector


Kris W.
FFA
A Journey with FFA


Jen R.
LPP
A diagnosis both oral and follicle


Aloma L.
CCCA
My path from discovery to diagnosis of cicatricial alopecia was long and circuitous


Anonymous
DL
I was diagnosed with possible discoid lupus in 1978 at age 28


Adrienne B.
FFA/LPP
My Story. Finding the Answers.

  Join Us          Donate        Volunteer

© 2019 Cicatricial Alopecia Research Foundation

Contact                Privacy Policy