When living with a rare disease, it is comforting to know that you are not alone. Each person’s journey with cicatricial alopecia is unique to them.
Learn, be inspired, and get to know others through the connections at CARF.

Share your story

Nancy G.
LPP
A Patient’s Perspective: Half Empty or Half Full?


Chris J.
LPP/FFA
Sometimes you need to take your own advice…my journey so far and lessons learned.


Sista D.
FFA/LPP
Living MY Life


Sally W.
FFA/LPP
My Hair Loss Journey


Teresa A.
Pseudopelade Scarring Alopecia
My New Normal


Angela P.
CCCA/LPP
Counting Myself Lucky


Betty T.
LPP
An Interview by Laurence Spector


Kris W.
FFA
A Journey with FFA


Jen R.
LPP
A diagnosis both oral and follicle


Aloma L.
CCCA
My path from discovery to diagnosis of cicatricial alopecia was long and circuitous


Anonymous
DL
I was diagnosed with possible discoid lupus in 1978 at age 28


Adrienne B.
FFA/LPP
My Story. Finding the Answers.


Sandra P.
FFA/LPP
I don’t feel sorry to see my scalp as it is my soul what makes me shine.


Jacqui S.
CCCA
Then she lived! My journey with CCCA


Tina C.
LLP
My LPP Journey


Mary B.
FFA
The Perfect Storm

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